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Jane Kaye

Wellcome Trust Research Fellow, The Ethox Centre 

Jane Kaye BA (ANU); LLB (Melb); Grad.Dip.Leg.Pract. (ANU); DPhil (Oxon) is a Research Fellow in Law at the Oxford Genetics Knowledge Park, based at the University of Oxford. Jane carries out research in the area of genetics, working with clinicians and researchers to identify issues of legal and policy significance. She is currently working on the following issues:-
• The way in which the shared nature of genetic information challenges the legal obligation of confidentiality and the duty of care of clinicians. This characteristic of genetic information also raises the issue of whether there is a right of access to shared genetic information by third parties such as relatives. This research will attempt to map the contours of the concept of genetic privacy.
• Property rights in biological samples, copyright in genetic databases and patents over medical diagnostic tests that have implications for the development of genetic tests.
• The application of the Gillick principle by clinicians in the genetic testing of adolescents at risk of sudden cardiac death.
• The requirements for consent in genetic research, in the case of genetic databases and for the purposes of genetic testing.

With her colleagues, Dr. Andrew Smart and Prof. Mike Parker of the Oxford Genetics Knowledge Park she has received funding from the Wellcome Trust for a socio-legal project called ‘Governing Genetic Databases’, which commenced in 2005.


Subject groups : Medical Law and Ethics

Publications (sorted by year)

J Kaye, N Hawkins and J Taylor, 'Patents and Translational Research in Genomics' (2007) 25(7) Nature Biotechnology 739-741

DOI: 10.1038/nbt0707-739

Other notes:Although short, a path-breaking interdisciplinary article in a major scientific journal (impact factor 22.7 in 2005; one of the 20 most cited scientific journals). It has already had great impact in the field of biotechnology. JK was lead author, producing the first draft and contributing some 40% overall.


ISBN: 1546-1696

J Kaye, 'Police collection and access to DNA samples' (2006) 2(1) Genomics, Society and Policy 16-27

J Kaye, 'Abandoning Informed Consent - the case of population collections' in Tutton R. & Corrigan O. (eds), Genetic Databases: Socio-ethical Issues in the Collection and Use of DNA (Routledge 2004)

J Kaye and C Johnson, 'Does the UK Biobank have a legal obligation to feedback individual findings to participants?' (2004) 12(3) Medical Law Review 239-267

DOI: 10.1093/medlaw/12.3.239

Other notes:50:50 contribution by the two co-authors.


ISBN: 1464-3790


Correspondence address: Ethox Centre, University of Oxford, Badenoch Building, Old Road Campus, Headington, Oxford OX3 7LG

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